NCAN has been a blessing. NCAN and my support group on Facebook (loveable lungnoids, which includes members of NCAN) have helped me in so many different ways. I was able to find information, support, answers, and best of all a community. Honestly I feel lucky to have this cancer because of the community. . .
Then I joined a facebook page and Maryann Wahmann reached out to me from the Neuroendocrine Cancer Awareness Network. From the beginning, Maryann was a true GOD SEND. She offered to meet with me and my brother in law via zoom immediately (on a Friday night). We met and I absorbed so much information. . .
NCAN has been a lifesaver for me by educating me about my rare cancer and its treatments. Cancer is scary enough but I feel empowered by the knowledge that I have gained to have an informed conversation with the many doctors. . .
The folks at the Neuroendocrine Network are always very helpful. They provide much needed information. . .
She found a rare tumor called a carcinoid tumor, she said it’s not a big deal. We will do a right colon hemicolectomy. I was 22 years old. No one knew anything about Carcinoid, yet alone a Syndrome? A few years down the road I became very ill. My family doctor knew I had Carcinoid Syndrome, but the other doctors believed it was in my head. Or I had something else. . .
NCAN has been such so accurate, informative and understanding – with the founders asking NOTHING and giving EVERYTHING to help me be better educated, connected and able to advocate for myself & others. This “nonprofit” works WITH others – in concert with. . .
Dr Warner answered all of my questions and also suggested I go to a NET conference that was being held later that month in NJ. That was the first time I met Maryann and Bob. I learned so much at that conference. The most important thing was I was not alone. My husband and I have since participated in many NCAN conferences. . .
I have learned more from this resource than I did from the hospital staff. . .
Without the Neuroendocrine Cancer Awareness Network, I would never have found the help I needed. Being treated by a specialist is an absolute must with our cancer. MaryAnn had the resources. . .
In the fall of 2014, we attended a National Conference hosted by NCAN. At the conference, as we met other patients and caregivers, I watched my wife come back to life. I realized we both needed this outlet for education and support. . .
Maryann and Bob have changed this cancer. It was once so rare that no one even knew where to start to get help. . .
That day was a defining moment in my new life as a cancer patient. The presentations and the professionals were exceptional, but it was the experience of meeting others who shared my rare diagnosis that allowed me to believe in my future again. Bob and Maryann have devoted more than a decade of their lives to bringing awareness. . .
I feel so grateful for all that NCAN has done for me since DX just two years ago. I have been able to attend two NCAN conference meetings, where I learned first-hand. . .
Due to the rare nature of this type of cancer, there are so few solid resources unless you live in/near a big city. NCAN provided a tremendous amount of information. . .
Words cannot express my deep love and gratitude for NCAN. They care immensely for the community, make it their priority to help others in all ways possible, put on amazingly educating conferences that change people’s lives. . .
I have been suffering with undiagnosed symptoms for years, and in a few hours I was on my way to finally getting the treatment I have needed for years. Maryann and her dedication to this rare cancer is saving my life. . .
I attended the national patient conference 2 years ago when looking for answers and direction with a lack of such anywhere else. The information presented was invaluable. . .
My wife has been a NET survivor for 14 years. It wasn’t until we found NCAN, that the world felt a bit smaller, and the information. . .
They have helped my family so much in the last four years from phone calls, to packets, to conferences, you name it. They helped us get on the right track. . .
This group is amazingly and self-sacrificing in its mission to promote awareness of NET cancer and to stand by the side of the patient with information, kindness. . .
Within days, I received a huge packet of information and even zebra print advocacy bracelets (don’t underestimate how much these mean). My husband and I cried and clutched that information packet like the life-saving treasure it was. NCAN asked for nothing, and gave me everything. . .
I like that they go to their network to see what the members need, rather than the other way around. Every person I’ve had contact with in the network–from patients, to the organizers, doctors, speakers and conference attendees. . .
I had a patient last night who found his way to us and a very important surgery because of you. I wanted to thank you for what you do and for the ginormous amount of hope and happiness you have brought to this man. . .
I had never heard of Neuroendocrine and frantically searched the internet. I stumbled across NCAN & reached out to Maryann who sent me a package. . .
I attended one of their sponsored presentations in another state and within weeks found the best medical team I’ve ever encountered. I now have the care. . .