What to Avoid with Carcinoid Syndrome

The 5 E’s To Avoid with Carcinoid Syndrome

The following can trigger or intensify carcinoid syndrome leading to a carcinoid crisis. Keeping a log or diary to help track symptoms will help identify which ones are triggers for you. Remember we are all different and our reactions may not be the same.

Epinephrine (EPI).  EPI (commonly known as Adrenaline) are one of the most unpredictable triggers to Carcinoid Syndrome and Carcinoid Crisis. It is commonly found in Novocain (procaine) used to numb you during dental work. Also, it can be found in over the counter and prescription allergy/cold medications. Medical bracelets can read No EPI, however this is not an allergy. If you are having a medical emergency that requires an EPI for life saving treatment it should be considered. True carcinoid crisis is extremely rare. Anesthesia can also cause carcinoid crisis and a protocol should be used to avoid such happenings

Exercise.  This does not mean any exercise. Exercise is important to maintaining proper health. Keeping track and knowing your limitations is your best way to avoid this being a trigger.


Eating.  Many foods can exacerbate the symptoms of carcinoid syndrome. Some examples are amine rich foods, dairy and sugary foods/drinks. This varies for everyone. Keeping a well-balanced healthy diet is quite important to NET patients.

Ethanol (alcohol, liquor).  It is quite common to flush when drinking alcohol, even for those who do not suffer from nets. However, it can actually intensify symptoms of carcinoid syndrome. Flushing covering more areas of the body, heart rate issues and severe GI issues just to name a few. Limitation of alcohol is recommended.

Emotions.  Stress in particular can be a trigger for carcinoid syndrome. Limiting your stress and finding a healthy way to control stress can help with this trigger. Using meditation, a hobby, keeping a diary or tolerable exercise can help reduce stress levels.