After 7 years of a lack of resources, accurate diagnosis & a general ignorance of NETs in my community – with my case including 2 major SB resections and metastasis from the ileum to lymph nodes, mesentery and pancreas – I was DESPERATE for answers and help. NCAN has been such so accurate, informative and understanding – with the founders asking NOTHING and giving EVERYTHING to help me be better educated, connected and able to advocate for myself & others. This “nonprofit” works WITH others – in concert with competing nonprofits, groups and organizations for the benefit of patients, physicians, research, advocacy – a totally selfless service that continues to benefit me & so many others. THANK YOU NCAN, Maryann, Bob, staff & volunteers! — Tom, Patient