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Over 90% Of All Carcinoid/Neuroendocrine
Tumor (NET) Patients Are Incorrectly Diagnosed And
Treated For The Wrong Disease.

Average Time From
Initial Onset Of Symptoms To Proper Diagnosis
Exceeds Five Years.

The Majority Of Specialists Are Not
Aware Of Current Diagnostic

And Treatment Options For Carcinoid/NET Cancer.

Physicians Still Falsely Believe NETs Are Benign,
Slow Growing, And Do Not Metastasize.
Countless Surgeons Mistakenly Trust Removal Of The Tumor Will Cure The Patient
And No Follow–Up Is Necessary.

Irritable Bowel Syndrome (IBS)
And Crohn’s Are The Two Most Common Misdiagnoses
For Patients With Midgut Carcinoid.

Most Prevalent Carcinoid/NET Symptoms
Are Diarrhea, Constipation, Abdominal Pain, Wheezing, Flushing,
Heart Palpitations, And Blood Pressure Fluctuations.

A 24-Hour Urine Test For 5-HIAA Levels
Can Aid With Diagnosis.

 A Few Simple Blood Tests, Including Serum Serotonin,
(NSE), Chromogranin-A, Pancreatic Peptide, Substance P, Gastrin,
And Neurokin-A, Can Aid With Diagnosis.

Other Diagnostics Include CT Scans, MRIs, Octreotide Scans,
MIBG Scans, And Gallium 68 Scans.

Over 115,000 People Are Living With NETs In The United States. .

Some Types Of NET Do Not Cause Symptoms,
While Others Cause General Gastrointestinal And Respiratory Symptoms
That Mimic More Common Diseases.

Unlike Most Other Cancers That Start In One Place,
NET Can Occur Wherever There
Are Neuroendocrine Cells In The Body.

Most NET Occur In The Gastrointestinal (GI) System,
Which Includes The Stomach, Intestines, And Other Organs.

Pancreatic Neuroendocrine Tumors Are A
Much Less Common Type Of Pancreatic Cancer.

Some Pancreatic Neuroendocrine Tumors
Cause Symptoms Because Of The Different Hormones
They Make And Release.

Other Types Of Pancreatic Neuroendocrine Tumors
Do Not Make And Release Hormones, But May Cause Symptoms
When They Grow And Spread.

Lung Neuroendocrine Tumors
Make Up About 2% Of All Lung Tumors. They Make Up About
25% Of All Types Of Neuroendocrine Tumors.

Some Types Of Lung Neuroendocrine Tumors
Can Cause Symptoms That Make Them Seem Like Other Respiratory Diseases.
However, Some Patients May Not Have Symptoms
At The Time They Are Diagnosed.