“An
investment
in knowledge
pays the best
interest.”
— BENJAMIN FRANKLIN
Over 90% Of All Carcinoid/Neuroendocrine Tumor (NET) Patients Are Incorrectly Diagnosed And Treated For The Wrong Disease.
Average Time From Initial Onset Of Symptoms To Proper Diagnosis Exceeds Five Years.
The Majority Of Specialists Are Not Aware Of Current Diagnostic And Treatment Options For Carcinoid/NET Cancer.
Physicians Still Falsely Believe NETs Are Benign, Slow Growing, And Do Not Metastasize. Countless Surgeons Mistakenly Trust Removal Of The Tumor Will Cure The Patient And No Follow–Up Is Necessary.
Irritable Bowel Syndrome (IBS) And Crohn’s Are The Two Most Common Misdiagnoses For Patients With Midgut Carcinoid.
Most Prevalent Carcinoid/NET Symptoms Are Diarrhea, Constipation, Abdominal Pain, Wheezing, Flushing, Heart Palpitations, And Blood Pressure Fluctuations.
Early Diagnosis Leads To Better Outcomes.
A Few Simple Blood Tests, Including Serum Serotonin, (NSE), Chromogranin-A, Pancreatic Peptide, Substance P, Gastrin, 5-HIAA And Neurokin-A, Can Aid With Diagnosis.
Other Diagnostics Include CT Scans, MRIs, Octreotide Scans, MIBG Scans, And Gallium 68 Scans.
Over 115,000 People Are Living With NETs In The United States.
Some Types Of NET Do Not Cause Symptoms, While Others Cause General Gastrointestinal And Respiratory Symptoms That Mimic More Common Diseases.
Unlike Most Other Cancers That Start In One Place, NET Can Occur Wherever There Are Neuroendocrine Cells In The Body.
Most NET Occur In The Gastrointestinal (GI) System, Which Includes The Stomach, Intestines, And Other Organs.
Pancreatic Neuroendocrine Tumors Are A Much Less Common Type Of Pancreatic Cancer.
Some Pancreatic Neuroendocrine Tumors Cause Symptoms Because Of The Different Hormones They Make And Release.
Other Types Of Pancreatic Neuroendocrine Tumors Do Not Make And Release Hormones, But May Cause Symptoms When They Grow And Spread.
Lung Neuroendocrine Tumors Make Up About 2% Of All Lung Tumors. They Make Up About 25% Of All Types Of Neuroendocrine Tumors.
Some Types Of Lung Neuroendocrine Tumors Can Cause Symptoms That Make Them Seem Like Other Respiratory Diseases. However, Some Patients May Not Have Symptoms At The Time They Are Diagnosed.
