Blog

October 1, 2021

By Anne Dabbs, 
NCAN TN Chapter Leader, NET Patient

The last Wednesday in July, I passed the important milestone of 5 years since I received my Neuroendocrine Cancer diagnosis. That occasion, however, was overshadowed as we celebrated our oldest grandchild’s fourth birthday. Talk of tutu wearing unicorns replaced any thoughts of cancer by everyone in my family but me. And I am so thankful for that! I have no time, no need, and no desire for a pity party.

Five years ago, my world turned upside down. I thought life as I knew it was over. A year later, almost to the hour, I held my first grandchild, and once again my life turned upside down. Or maybe, rightfully, it returned to right side up!

My life is different now; in many ways for the better. Having Stage 4 Neuroendocrine Cancer makes one acutely aware of life’s checks and balances. I take more time for the little things, and I allot less time to the energy burners. I have learned how to prioritize my time and energy. I have learned how to put my needs first when necessary. I have learned that I need less, and my wants are even fewer.

My family has been, and will continue to be, my biggest supporters and greatest strengths. We are a prime example of the saying that “There may be only one patient, but the whole family has cancer”. I am proud of how far we have come in accepting my NETs into our lives without letting it destroy our happiness these past five years. I am confident that whatever NETs throws our way, we have made it this far with a healthy determination to live life to the fullest, and we will continue to do so.

Amid the swirls of pink and purple streamers, tutu wearing grandparents and cousins full of unicorn cake, I had my private moment of awe that I have surpassed my initial, mis-informed, prognosis of 3-5 years. I took my time to reflect on all that I have received, and all I have yet to accomplish. Never to be NED, cancer is my constant companion now. But, it is no longer the 24/7 focus of my attention. I had a moment of quiet thanksgiving and private recognition for my journey thus far. As I returned to the festivities around me, I reaffirmed my knowledge that I am not alone as I live with my disease.

We here at NCAN want you to know that you also are never alone in your Neuroendocrine Cancer journey. Our hotline, our local support groups, our website and our events all bring support and encouragement to those who travel this path. Whether you are newly diagnosed, or an experienced patient, we want to be a part of your dazzle. When you need an answer to a question, clarification of a medical term, or a listening ear, NCAN is with you every step of the way.

Reach out if you need us. It’s what we are here for.

Find out more about how YOU can help the NET Community.

Disclaimer: NCAN blog posts are the opinions of its writers and are not intended as a replacement for medical advice. Please consult your Health Care Providers for individual concerns.