October 11, 2019
by Ms. Anne Dabbs
Our NETS community was once again in the national news as the obituary of Ms. Raine Riggs was reported earlier this week.
We at NCAN want to extend our sincere condolences to her family and friends at this sorrowful time. To read Ms Riggs obituary, we are introduced to a young woman who lived her life in service for others. In addition to her myriad of philanthropic endeavors, Ms Riggs’ obituary notice in the “Newsweek” publication contains more astonishing reporting…a basic and accurate description of Neuroendocrine Cancer which is listed as her cause of death.
Heartbreakingly, the article states that she began feeling severely ill only 3 weeks before being diagnosed with Neuroendocrine Cancer and then dying a mere two days later. Specific details beyond these facts are pure speculation for our NETS community and are most likely too raw for her family to publish at this point. Our community members have been rocked to our core once again, coming to grips with our personal experiences with this bizarre disease. It is a challenge for us to not grasp for more information, and to once again be frustrated by limited details.
As we grieve with the Riggs/Sanders family, we can be comforted by the fact that Ms Riggs’ cause of death was correctly identified as Neuroendocrine Cancer. And in true philanthropic fashion, that is her gift to our community.
Accepting the diagnosis of a rare and incurable cancer is challenging. Talking about it in casual conversation is awkward. Sharing it with the world is admirable. If you are able to share your NETS story in a larger forum, please do so. If you are able to share NETS educational opportunities, please act accordingly. If you are unable to share openly about our disease, please establish a relationship with a NETS organization whose mission is for increased research, education, and advocacy. In honor and recognition of her generous heart and service to those often overlooked, let us be motivated to bring her attitude to our endeavors for increased awareness and additional education.
Disclaimer: NCAN blog posts are the opinions of its writers and are not intended as a replacement for medical advice. Please consult your Heath Care Providers for individual concerns.